Posts by Lilith __

  • Hard News: Our own fake news,

    It worries me that some of my highly-educated and otherwise intelligent friends won't take Snopes as the end of the discussion.
    Then it's "Oh yeah it's a badly written article. I'll have to find another one with citations cos this issue is important."
    "Well, it might not be right about everything but still some very valid points here".
    "Yeah it's fake, but still pretty interesting, right?"

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Hard News: The Oncoming Day, in reply to James Freeman,

    With 20,000 patients not having medication coverage and a list price of over $100,000 NZD it adds up to 200 billion pennies.

    Pennies =/= dollars even if pennies were NZ currency, which they aren't.

    I get that the patented version of the drug is expensive, but as Russell has detailed in previous columns, we have a looming public health crisis of potentially 20,000 people with acute liver failure, which is a disaster in both human and monetary terms.

    I'm delighted that generic-buying solutions are being found. And I hope all that human potential of people suffering with Hep C can be recovered. Such fantastic news for Martin Phillips and his family and friends and fans. Each person successfully treated is a life given back.

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Up Front: For Your Own Safety, in reply to Emma Hart,

    Believe it or not, women bleed.

    Some women bleed.

    Fair enough. I hate that menstruation is so shameful.

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Up Front: For Your Own Safety,

    Does anyone else remember the Ladies’ at the Academy cinema in Chch? Vase of fresh flowers, picture on the wall. Extremely civilised. Toilet facilities don’t have to be only utilitarian.
    Post-quake, some community portaloos got similar treatment. Locals kept them clean and fresh, and some with a jar of flowers in the corner or children’s pictures on the wall.

    East-Chch people I think are the least likely to be fussy about gender segregation. Something other than a hole in the ground you dig yourself? Total win.

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Up Front: For Your Own Safety, in reply to Simon Lyall,

    the same amount of shit and piss events as the males but with the occasional added bonus of menstrual blood

    Believe it or not, women bleed.

    Just BTW, there's no law stating men can't piss while sitting down.

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Hard News: Friday Music: Welcome back…,

    Wow, that Nadia Reid album is awesome! Thx for heads-up. <3

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Access: Privacy and the right to consent…,

    It’s hard to understand what possible advantage there could be in such creepy individual monitoring. I know there’s been talk of greater co-ordination between multiple government agencies and NGOs so that people get all the help they need. But I assumed that would take the form of some sort of personal mentoring, not a fucking surveillance state. Citizens need to be empowered, not spied on.

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Hard News: Hep C: When doctors do the…, in reply to Hazel Heal,

    It's amazing what one person or a small group of passionate people can achieve. I just wish the health administrators could do it! And that there wasn't such a gulf between public health organisations and the people they serve.

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Hard News: Hep C: When doctors do the…,

    How awful. Individual drug researchers will have a variety of motivations, but drug companies exist to make profit, and I don’t think we can expect them to be philanthropic.
    I would expect all doctors to be fighting for their patients’ health, though.

    The situation has parallels in this recent Buzzfeed story about HIV-prevention and the NHS:

    "He had heard about a new drug regime that was being used to prevent HIV. The medication’s brand name is Truvada, and the regime – which involves taking this antiretroviral pill every day – is dubbed PrEP: pre-exposure prophylaxis. Owen, fearful of contracting the virus amid this unleashed world, couldn’t decide whether to start taking the drug, let alone how to obtain it.
    PrEP was not available on the NHS and a private prescription would cost about £500 per month. But a major NHS study was underway to ascertain how effective the drug was, and who should be given it.”

    “This person said, ‘We have a handful of people who use our clinic and they have been self-sourcing generics from this website and we have been discreetly doing the monitoring – discreetly checking their blood periodically to check that there’s active levels of the drug.’”
    In one sentence, everything was possible. There was somewhere to buy the non-branded versions of the drug – and at around £50 a month, a tenth of the price of a private prescription. And there was, potentially, a way to ensure the drugs were working properly. At the time, because PrEP was not available on the NHS, neither – officially ­– were the urine and blood tests needed to check that the drugs were not adversely affecting kidney function (which some antiretrovirals can do) and were not fake.”

    “A new and unexpected battle began in March 2016. After 18 months of discussions with the HIV sector, NHS England derailed the commissioning process – the path that leads to a drug being funded – for PrEP. Suddenly, all the doctors and charities who thought that it might soon become available to patients were left disappointed.”

    “A legal battle commenced, brought by the National AIDS Trust, to counter NHS England’s claim that it was not their responsibility to provide PrEP as HIV prevention was the job of local councils. At each step of this process, as news reports described what was happening, traffic to IWantPrEPNow continued to climb.

    You should read the full article because it’s amazing. But long story short, an HIV-positive homeless man saved thousands of others from becoming HIV-infected, by directing them to reliable sources of generic drugs. He did this for no payment, while GPs, sexual health clinics, and specialists felt unable to do it.

    The guy’s a hero. But how did it come to this??

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

  • Hard News: Public Address founder…,

    fascinating result!

    Dunedin • Since Jul 2010 • 3882 posts Report Reply

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