Except for ACC and National Super recipients who are recognised as being entitled.
It seems to me that essential disability supports should be an entitlement also.

punishment for daring to demand equal rights.

Lack of entitlement, that is lack of right to support services, was brought home to me at a meeting with a senior MOH person presenting on IF with respite. I used the word " entitlement" in a context where it was the correct word to use. Her face fell and she had to control her very visible reaction. When my daughter and I talked it over later we found we'd reached the same conclusion, that as far as MOH goes no-one is entitled to anything. Which effectively means they don't believe we have any right to their support.

Thanks Hilary, we can but hope.

Kia ora Sacha