Posts by Hilary Stace

  • Access: Disability as a wicked policy problem, in reply to Rosemary McDonald,

    There are a couple of organisations which have done some major work on their governance, management, staff training etc in the last few years. I would hope that all disability organisations also do constant self review. Not about just being risk averse but more about being ethical, transparent, respectful of their clients and families. Hard to do, but I think there are some good people out there (and the current head of NZDSN is one).

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Up Front: Not Uniform, in reply to Lucy Telfar Barnard,

    My experience as a mother of a new third former is that you had to have everything new, and all the extras, to be cool. Which meant numerous items to allow for washing, all weathers etc. It was so expensive. Although after a few years it no longer mattered. Whereas at the non uniform school my son attended you could wear more of less anything, and the students did, from a three piece suit, to a kilt or dress (including boys), assorted hair styles, colours and jewellery. Creative for them and made them feel much happier about school in my observation.

    In my son's case good for someone with sensory issues to be able to wear what he found comfortable. Of course most kids wore the uniform of t-shirts and jeans, and those from Hallensteins and the Warehouse were fine. Abusive slogans were about the only thing challenged, and then it generally became a discussion with the principal. Wearing their own choice of clothes is also generally less smelly as uniforms, particularly heavy wool ones, are difficult to clean regularly.

    I was part of the cohort a few years ago who fought to get rid of the uniform and in those days it was the thing to do to have the scruffiest, holiest, worn or distorted uniform to make a point that it did no credit to the school.

    So in my experience, uniforms are an extra expense to families, not a saving.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Up Front: Not Uniform,

    Do we want to teach students conformity above all, or encourage creativity? Uniforms are all about forcing students in all their diversity into one peg hole. About adults saying do what I say but not what I do. About kids being shamed because they cannot afford the new expensive uniform and shoes and all the extras rather than the shiny hand me downs. I'm afraid I dislike uniforms and all they signify.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Access: Disability as a wicked policy problem, in reply to Rosemary McDonald,

    Think Differently did contribute to a great range of projects over the 5 years the fund was in place. Was a rare opportunity for some 'blue skies' funding and numerous groups and individuals applied. Not sure whether they changed anybody's mind but I'm sure the projects were valuable for the participants. One project partially funded by Think Differently was the Wellington play Wake Up Tomorrow by Active, the Idea Services group for young people with ID. It was brilliant and creative and won the best play of the Fringe Festival and best FF actor this year. Showed they could compete on the same terms as others, given the opportunity and funding. There is no other fund like it and it is so sad it has gone.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Speaker: Land of the brave little kids, in reply to Angela Hart,

    Angela - that story was from a time when we had a more or less functioning welfare state. Doubt you get offered these things now.,

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Speaker: Land of the brave little kids,

    My daughter and a friend's son were diagnosed with leukaemia about the same age although we were in Wellington and he was in the US. His treatment seemed to be much more intense and longer with long stays in hospital and chemo via lumbar punctures. My daughter's was administered via a butterfly in her hand. (This was a few years ago and standard treatment is much gentler now). We were home most of the time, hospital stays were rare, and she went to school as much as she felt up to it. It seemed like they had more or less the same type of illness but the US treatment seemed much more all encompassing and risk averse while ours seemed was much more relaxed and child centred. Ours was all free as well as access to free counselling, household help, childcare etc. Theirs was very expensive. I am probably totally wrong about all this but just my impression at the time.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Access: Disability as a wicked policy problem,

    Interesting sector briefing (policy paper) from the providers' body the NZDSN

    http://www.nzdsn.org.nz/Blogs/477/60/important-nzdsn-sector-briefing-now-available/

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Up Front: Well, Read Women, in reply to Carol Stewart,

    Yes, and I have a copy somewhere. There was also a documentary about her a few years ago. I have a friend who collects Moomin things (mainly from Japan) and gives them for presents so I have a lovely Moomin calendar in the kitchen.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Access: Disability as a wicked policy problem, in reply to Rosemary McDonald,

    Thank you Rosemary and Peter for re-reading this whole thread (which I must do too). I'm going to a seminar today about an inclusive New Zealand so I wonder if I will hear any new answers. I also heard someone high up but reflective say that disability support is actually mainly about income maintenance. So that UBI thing again.

    And that awful assumption that people will rip the system off given half a chance is so untrue and disrespectful of disabled people and beneficiaries generally. They are just trying to survive on minimal money. We know which category of people is most likely to rip us all off and they rarely get any sanctions.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

  • Access: Disability as a wicked policy problem,

    What annoys me is that if resources are so tight, as they all claim, that it is wasted on this petty bureaucratic audit stuff. It takes up so much time and energy from people who don't have much of either.

    Wgtn • Since Jun 2008 • 2444 posts Report Reply

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