Hard News: About Arie
646 Responses
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Sofie Bribiesca, in reply to
So you’re against police beating people, but you’re all for slapping on cutesy patronizing monikers because it sounds kinda happy? Exemplary.
Point taken Chris, I am against ANYBODY beating anyone (other than mutual consent for personal reasons). I do not however equate your comparison as being disrespectful of the same degree. Your offence is your offence, and as you say and I will accept, as you were.
But just to add, anyone who is alive today could claim their life is their work and many people get their names shortened, often from friends who do as a term of endearment without it suggesting otherwise although it can happen. I do not see that anyone here intended to insult. -
Sacha, in reply to
I am compelled to avoid the term Aspie because in the new DSM-V (due in 2013) the category will no longer exist.
To continue a theme, homosexuality was a diagnosable condition in the DSM until the 1970s. Hardly a bible for living.
And while Aspergers Syndrome may vanish as a diagnosis, being an Aspie might continue. Perhaps we could think of it more like an ethnicity than a clinical defect; a group you belong to rather than something a doctor says is wrong with you.
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Sacha, in reply to
fortunately it's not a popularity contest
Agreed
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What people describe themselves as is up to them to decide. Many people on the autistic spectrum choose to describe themselves as Aspies but others prefer terms like Aspergians or autists. As an outsider (a neurotypical or NT person) I don't tend to use any terms other than 'autistic people' or 'people with Aspergers or autism' or 'on the autistic spectrum' unless I'm with neurodiverse or ND friends who are comfortable for me to use this term. This blog I classify as a friendly environment, as I've assumed (?) many contributors are somewhere on the spectrum, so have used the term 'Aspie'. But if that offends, happy to reconsider.
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Sacha, in reply to
Condescension reached new levels
There's a role for playfulness with this sort of conversation, surely?
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There’s a role for playfulness with this sort of conversation, surely?
Certainly for those who can keep up with the play Sacha ;) but in this situation, the difficulty in doing so is a distinguishing feature of the labelled.
Sofie, I was hasty, as I am prone to be. I have no intention of equating you guys with wayward police. I'm just driven by my disdain for this label and labels in general.
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giovanni tiso, in reply to
I'm sure you can detect that it may be more respectful to Hans Asperger life's work (over 300 publications on the subject) and Asperger's sufferers to not relegate his name to prefix doom, in the rush to conveniently slap a cutesy label on people. In the same way as we don't refer to Michael J Fox as a Parkie, or an H1N1 sufferer as a porkie.
Once again: it's not up to you. Some people with Asperger's and their loved ones clearly consider it a term of endearment, which is what matters, and I remain convinced that your haughty slapdown was quite out of order.
Also:
Gioie
is not even close to being my name or a nickname that you should feel free to use, just FYI.
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Some people with Asperger’s and their loved ones clearly consider it a term of endearment, which is what matters, and I remain convinced that your haughty slapdown was quite out of order.
Some do, some don’t, my haughtiness a case of inference into me letting you know in no uncertain terms that I dislike being labeled an Aspie, . Obviously you’ll call me what you want to, I did likewise Gio to clarify my point.
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giovanni tiso, in reply to
there's nothing haughty about me letting you know in no uncertain terms that I dislike you labelling me an Aspie
When have I done that, pray?
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Sacha, in reply to
the difficulty in doing so is a distinguishing feature of the labelled
Good point - for ages I've wanted to build a proper conversation space that works well for us, both online and offline.
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Sacha, in reply to
When have I done that, pray?
I believe Chris is saying he told you he does not like the term, and he is one of us. I'm not sure the second part was clear earlier.
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Stephen Judd, in reply to
I dislike you labelling me an Aspie
I had no idea it was a term anyone objected to, and was under the evidently mistaken impression it was a well accepted shorthand. I'm sorry, Chris.
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chris, in reply to
I dislike you labelling me an Aspie
When have I done that, pray?
Sorry, I edited Gio, I was referring back to
the alternative to calling somebody an Aspie is calling them “people who have Asperger’s disorder”
I see many alternatives, as Hilary mentioned above. Sorry for the fuss people, yes Stephen it is well accepted, maybe over exposure is what has caused it to grate with me.
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giovanni tiso, in reply to
I see many alternatives.
Yes, fair enough.
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And what have we learned, children? That each person has their own preferences. Surely, Chris, you would agree, that as long as it is the person, or their family/loved ones, who is/are directly affected by their uniqueness of being, who gets to decide how named or unnamed they are?
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Surely, Chris, you would agree, that as long as it is the person, or their family/loved ones, who is/are directly affected by their uniqueness of being, who gets to decide how named or unnamed they are?
I agree Jackie, and it's not that I love anyone here any the less for using it, it's simply that it implies an over-familiarity or over-trivialization (when referring to the greater population) that doesn't sit well with me.
he is one of us. I’m not sure the second part was clear earlier.
For some reason I wrongfully assumed that it had been obvious for quite some time.
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Sacha, in reply to
What people describe themselves as is up to them to decide.
Not at every level. Individually that's fine - and I've often said that disabled people pay more attention to what organisations and people *do* than to what they call it or us.
However, for policy and collective action to work, we do need a proper strategic conversation process - one that's mandated to decide on some key concepts and terms that will be used for at least a few years (then revisited as knowledge evolves). And used regardless of how some of us may feel about them.
But only after listening properly to one another, feeding in relevant expertise and understanding the implications of the alternatives. It should help us all focus on what needs to be improved rather than getting diverted by misunderstandings or by an inadequate conceptual or communication base that saps our efforts of their power. Naming has some power of its own.
There are plenty of ways to conduct that strategic conversation which embrace our variety, but it's a leadership function and so is currently prey to the general weakness in that area (as well as the lack of resources dedicated to it). Really would have helped over the last decade (though I'm now concerned we're about to get a half-arsed and anaemic version done to us rather than by us and with us). Basically, I'm tired of unhelpful language, stereotypes and actions trotted out by well-meaning folk and often hoovering up limited resources, trust and energy.
Again, that's only at a bigger level - and certainly not a reflection of this discussion today. I welcome anyone using whatever terms they like in personal or non-policy settings like this. Call me a fish if you wish.
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Sacha, in reply to
I wrongfully assumed that it had been obvious for quite some time
Another distinguishing feature of the labelled :)
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Sacha, in reply to
And what have we learned, children?
That some early childhood education habits die hard?
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or an H1N1 sufferer as a porkie.
I thought they were Mexicans???
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Chris, could you perhaps point to where anyone here has labelled you with the term "Aspie"? Not used the term generally, but used it specifically in your direction.
I've used it, generally, but I'm also one of the multitude of people on PAS who's at a point on the Asperger's spectrum. So you, as another person on the spectrum, want to stop me from using a term that also includes myself? Without implying anything about your sexuality, that's like trying to stop Craig from using the word "gay" as a general term.
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Matthew Poole, in reply to
Call me a fish if you wish.
Any particular sort of fish? Or just a fishy one?
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3410,
Chris, could you perhaps point to where anyone here has labelled you with the term "Aspie"? Not used the term generally, but used it specifically in your direction.
To be fair, it amount to the same thing.
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Asperger’s sufferers
Ahem, I do not suffer from it. On the other hand I do suffer from a lot of patronising jerks who think I have "issues" that I want to force on their poor, beset selves (actually, I'm having a snark at a certain academic colleague there...). I can understand your frustration, but I've given up giving a shit about fitting in for the sake of other people's prejudices and I'm certainly not going to give a second to people who say "disability" when to me they in particular seem to be the ones who are disabled by terminal frivolity. I will not adjust my set, it is the studio that is at fault. Grumble, grumble...
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Sacha, in reply to
Or just a fishy one?
Heck, slap me with it if you will :)
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