Posts by Chelle Hope

  • Access: The Fall, in reply to BenWilson,

    Thanks, Ben.

    No, I have absolutely no regrets about not accepting more help at the time. I didn't need it until I got sick. Then that extra pressure on my time and energy got too much, which is when I asked for help. Getting extra help with housework has meant I can use my energy and time to look after myself properly.

    I want to make clear too, that help is in the form of housework. I'll seek psychological help if I need it but at this stage I don't. I wasn't sure if that was clear, going by your comment.

    We shouldn't have to take help we don't need at the time it's offered in anticipation of a future acute event. Systems need to be more responsive and flexible to changing needs.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: The Fall,

    Thank you. Still very much "in it" I'm afraid. I'm through the worst of it but still struggling and in pain. I'll get there eventually.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: The Fall, in reply to Sacha,

    Thanks, Sacha. Yeah, it does help a lot.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: A different and interesting brain, in reply to Sacha,

    This is such a good point and something I often remind others of when they feel sorry for me.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: A different and interesting brain, in reply to Russell Brown,

    I would so love to be able to do the 'mind map' thing. The visual world often makes no sense to me at all beyond what I immediately see. Not being able to put that snapshot into any wider context is a real pain.

    Weirdly, I read maps really quite well, but only if they don't move around like GPS ones often do. That's disorientating. Paper maps are better. Luckily GPS can tell you which way to go as you're travelling.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: A different and interesting brain, in reply to Lilith __,

    I remember the voice like a recording for a while after, then I only remember the information. That said, I remember the voices of all of my lecturers even now and in some cases it's been over 15 years.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: A different and interesting brain, in reply to Russell Brown,

    Yeah, that was my fault. I should have said that what I generally need are directions that start with which way to leave a building (left or right) and are very specifically detailed. I can still get it wrong though. In that particular case, I think I read my GPS wrong.

    It's handy to txt detailed directions or even a map.

    In places quite new to me, even if I've been before, I rely entirely on GPS. Every time I leave a place, including where I'm staying, it looks like a completely new place I've never been, to me. I don't recognise it.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: I'm not laughing, in reply to WaterDragon,

    Thanks very much.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: I'm not laughing, in reply to Rosemary McDonald,

    Yeah, I get this, too. It might seem like a very different thing but I think it is two sides of the same coin. Being sort of actively ignored is really the same as the negative attention I was talking about. When someone is making a joke that doesn't land about me and my disability, they are clearly uncomfortable and are trying to overcompensate. Same thing with ignoring someone who is different, with the effect that they are rendered invisible.

    Hastings • Since May 2014 • 40 posts Report Reply

  • Access: I'm not laughing, in reply to Hilary Stace,

    Thanks, Hilary. Yeah, I think that's the problem. Very difficult to react with anything but a sort of forced politeness when people aren't trying to be awful.

    Hastings • Since May 2014 • 40 posts Report Reply

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