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Access: Disability as a wicked policy problem

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  • Rosemary McDonald,

    I remember those conversations Hilary...and respite care was the emphasis. If "MyCare" is about respite...why set up a limited company?

    IF is being used for respite and a carer support type scheme..Tauranga is where I've heard of it being used...paying relief carers about $18 per hour...rather than the $3 under CSS. In Hamilton, (years ago now) CCS Disability Action had their Home To Home scheme, matching carer families with families looking for care for a disabled child. CCS did the vetting and police checks.

    We cared for a couple of kids on the spectrum...but I'm afraid we could not provide respite for those children with extreme behaviours....and those inclined to bolt. We simply could not guarantee their safety.

    Please...someone check out one of those meetings?

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Hilary Stace,

    Setting up the company may be a legal thing - I imagine there is some risk for such a service. Carers NZ is a peak body, not a service provider. This is a new service by a new service provider.

    Wgtn • Since Jun 2008 • 3196 posts Report Reply

  • Hilary Stace,

    Another issue to make submissions on (as if we didn't have enough to do!). The Justice review on family violence could be detrimental for adults with autism etc who are susceptible to sensory related meltdowns. There is already a major lack of support for them and their families. But it is a good chance to tell the government about the realities. Thanks to community campaigner Mike Grigg of Wainuiomata who has already raised the issue in this recent article.

    http://www.stuff.co.nz/national/health/71044767/autistic-boys-father-fears-for-son-under-family-violence-review

    Info about the review and link to (very large) discussion document. Responses due 18 September.

    http://www.beehive.govt.nz/release/fresh-look-family-violence-laws

    Wgtn • Since Jun 2008 • 3196 posts Report Reply

  • Rosemary McDonald,

    http://www.odt.co.nz/news/dunedin/353203/city-seen-ideal-disability-centre

    Paul Gibson.....

    Disability studies involves a completely different way of thinking about disability. So it's not the traditional way of thinking in the medical or clinical way, but thinking about disability as a human rights issue, as a natural, inherent part of being human and with the leadership by disabled people.''

    New Zealand used to be considered a world leader on disability action, but not any more.

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Rosemary McDonald,

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Angela Hart, in reply to Rosemary McDonald,

    And the Funded Family Care evaluation has just been released for your entertainment, edification and delight

    http://www.health.govt.nz/publication/evaluation-funded-family-care

    Christchurch • Since Apr 2014 • 614 posts Report Reply

  • walrus, in reply to Angela Hart,

    Wow, the topic doesn't even rate a proper proof-reader, it would seem. #signofthetimes

    It's eerie hearing my words echo in this report; I seem to have been pretty much the only FFC "caree" able and willing to speak to these researchers.

    Auckland • Since Jan 2015 • 13 posts Report Reply

  • Hilary Stace,

    Thanks for these reports. At least some reports and evaluations don't end up in a big black hole. Worth keeping to check back on in 10 years time and see if anything has changed.

    Wgtn • Since Jun 2008 • 3196 posts Report Reply

  • Angela Hart, in reply to Hilary Stace,

    I wish I could take the long view Hilary, but I can't. These are people's lives that are being impacted, now and for the foreseeable future. It is totally unacceptable to see and hear all the fine words about the New Model knowing that in practice today for most people they mean nothing. Nada. Zilch.
    How did Metge put it? Talking past each other. For people with high and complex needs the cultural disconnect is like the Grand Canyon, except that the authorities haven't even noticed it's there. I'd so love to show them in a very experiental way!

    In my opinion there is a significant difference in the quality of the two sets of evaluations linked to. It's very interesting to compare.

    Christchurch • Since Apr 2014 • 614 posts Report Reply

  • Hilary Stace,

    I have to declare a small conflict of interest in the New Model evaluation. Many years ago when the tender came up I advised Evalue Research about some of the background and a suitable disability representative. When that representative got another job (hint - he has written posts here) I and others recommended Martin Sullivan replace him. A couple of years ago I helped set up some of the interviews although I didn't participate in any of them. I haven't read the final report but I respect the skills of that team.

    Wgtn • Since Jun 2008 • 3196 posts Report Reply

  • Angela Hart,

    Another example of the yawning chasm between what should be provided and what is. Only because the media got involved does the agency shift its inhuman and surely incorrect position
    https://www.tvnz.co.nz/one-news/new-zealand/humiliated-and-homeless-one-news-reveals-disabled-man-s-desperate-living-situation-q07605

    Christchurch • Since Apr 2014 • 614 posts Report Reply

  • Angela Hart,

    A later piece provides more detail
    http://www.stuff.co.nz/national/health/71512048/mother-and-disabled-son-offered-house-after-five-months

    The claim that they were bumped off the list in error is all too common and not good enough.
    Kudos to the kind HNZ tenant who gave these people a place to live and advocated on their behalf.

    Christchurch • Since Apr 2014 • 614 posts Report Reply

  • Rosemary McDonald, in reply to Angela Hart,

    And the Funded Family Care evaluation has just been released for your entertainment, edification and delight

    Thanks for posting this Angela....Whew, clearly the researchers put plenty of effort into attempting to turn a pigs ear into a silk purse...albeit a purse that few people seem to want to pick up.

    At a first reading ...pure bullshittery.

    " Bullshittery " being a wonderful word recently repopularised by the dearly departed Dita Di.

    I have many questions regarding Funded family Care

    1. Funding for 1600 disabled people to have family (other than spouses and partners) as their paid carer. Why only 191 recipients???

    2. The Miserly of Health claimed in 2008 that there were...

    http://www.nzlii.org/nz/cases/NZHRRT/2010/1.html

    But it was evident (and agreed by the parties) that there is a significant number of people with severe disabilities who do not receive Ministry funded disability support services – this group could total up to 29,000 in all.

    ...29000 severely disabled people being cared for by unpaid family....

    where the bloody hell are they????

    More bullshittery.

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Marc C,

    Min. of Health, Dep. Dir.-Gen., OIA rqst, social bonds, transfered fr. MSD, reply, 25.08.15.pdf

    So far progress seems slow with the much hailed "social impact bonds", as a recently obtained OIA response shows (from a trusted source).

    This is what the Ministry's website has for informatin:
    http://www.health.govt.nz/our-work/preventative-health-wellness/social-bonds-new-zealand-pilot/social-bonds-progress-date

    They are moving slowly but determinedly, it seems.

    Akl • Since Oct 2012 • 437 posts Report Reply

  • Rosemary McDonald, in reply to Rosemary McDonald,

    More bullshittery.

    from the Report...

    ‘ think it comes back to the attitude of the officials who designed the adjustable parts
    of this policy in the way they did and I think that they should be ashamed of
    themselves. And I hope you quote me on that. … I think that the culture of the
    Ministry and the way they wrote their rules, the culture of the way they think, their
    culture of suspicion and mistrust of carers is that, you know, you’re fine if you’re
    doing it for nothing but suddenly you’re a greedy, grasping, potential fraudster if we
    are going to give you a few hours at minimum wage? … The way they [the Ministry]
    are acting is the worst possible example of a really 1950s highly bureaucratic, tick-all the-boxes
    mentality. They don’t have to do that, but they choose to do it.

    You know, the Misery of Health and the Government responded in the most punitive manner possible to the outcome of the Family Carers Case.

    They achieved a level of bureaucratic malevolence worthy of a fascist administration with casual disregard for basic human rights.

    I wonder, sometimes, if the low uptake amounts to a boycott.

    Is there a mechanism whereby FFC participants can communicate with each other...and perhaps organise....in the militant sense of the word?

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Angela Hart, in reply to Rosemary McDonald,

    Is there a mechanism whereby FFC participants can communicate with each other...and perhaps organise....in the militant sense of the word?

    Unfortunately, no not really. The natural mechanism should be CarersNZ but there are good reasons many of us don't trust that group to advocate well for us. The same applies to other caregiver groups, the most likely ones rely on government funding, which currently has the consequence of gagging them. While FFC carers could set up their own Facebook page, the group it attracted would no doubt be seduced in the same way.
    The only DPOs doing decent advocacy right now are CCS and IHC, with perhaps DPA starting to regain some of its mana in that area too. Family carers and their benefit to their disabled kin are incidental to the focus of these groups, not a priority.

    In addition, of course, those who have FFC are pretty busy managing care and support for some of the highest need band of people. The disability support needs of the people cared for are more urgently and critically important than the financial needs of their whanau. Although of course, if the family is on a more secure financial footing, that reduces stress and potentially broadens the horizons of the disabled person too.

    Christchurch • Since Apr 2014 • 614 posts Report Reply

  • Hilary Stace, in reply to Angela Hart,

    You could set up a closed Facebook Group. Or even an open one. Some staunch collective advocacy from some Facebook groups for parents of those with autism or kids with special needs generally has recently forced the Ministry of Education to run well-attended angry meetings around the country on the previously almost secretive special education update.

    Wgtn • Since Jun 2008 • 3196 posts Report Reply

  • Rosemary McDonald, in reply to Hilary Stace,

    generally has recently forced the Ministry of Education to run well-attended angry meetings around the country on the previously almost secretive special education update.

    Oh yes!

    Now that's what I'm talking about!

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Rosemary McDonald,

    Seems to be the season for it....

    this...http://www3.iserve.net.nz/users/incharge/incharge.org.nz/htdocs/wp-content/uploads/2014/01/Dovetail-IF-cost-analysis-Final1.pdf

    from Manawanui, indicating that IF is cheaper in the long run.

    Now, if only MOH:DSS clients could pay their family carers through IF...

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • walrus, in reply to Rosemary McDonald,

    Now, if only MOH:DSS clients could pay their family carers through IF...

    Hell, I would have taken my family carer being permitted to seek employment through an agency to provide my care! The agencies could then have screened prospective family carers for suitability the same way they (should) do other applicants, monitored the performance of those family carers they employed, checked for abuse, etc... Instead we have this separate and entirely unequal system that results in my family carer being paid less than she could be if she weren't family, for fewer hours, with a bunch of stupid restrictions (like a limit on how many hours she can work AT ANY JOB/S each week), and intrusive visits from NASC workers to ensure that the influence of all those enticing minimum wage dollars hasn't inexorably driven her to abuse me. But clearly they did not want to do it in a simple or sensible (or fair) way.

    Auckland • Since Jan 2015 • 13 posts Report Reply

  • Sacha, in reply to Angela Hart,

    The only DPOs doing decent advocacy right now are CCS and IHC

    They are both service providers, not counted as DPOs under the UN Convention framework. They do seem to be actually saying stuff in public on behalf of their prime stakeholder groups: users of their services and their families. Unlike the actual DPOs on behalf of theirs.

    Ak • Since May 2008 • 19680 posts Report Reply

  • Rosemary McDonald,

    Nicky Wagner, Minister for Disability Issues (for her sins) wants feedback on the 2014-18 Disability Action Plan.

    https://www.national.org.nz/news/news/media-releases/detail/2015/09/03/Feedback-sought-on-Disability-Action-Plan

    Well, for a start Nicky...you could have a read of this....
    http://docstore.ohchr.org/SelfServices/FilesHandler.ashx?enc=6QkG1d%2fPPRiCAqhKb7yhsl0TAZAFn%2fysap%2b9nlo7rkvRmNJ6uyxoc44CPcdshSIzpSxW%2bwhPoD0WnpuECahTAQtdCX5Yjd%2btcuc1aJHm%2fCSIyN13jMcmmBwFgKgSEgah

    ...and maybe just work your way through the recommendations.

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Marc C,

    Talking about policy and disability, there was some interesting questioning happening in Parliament yesterday. We got a first glimpse of what can be expected to be delivered as a kind of “evaluation report” on new, outsourced, contracted social security programs, such as the so-called ‘Mental Health Employment Services’ and also the ‘Sole Parent Employment Service’. I bet it will be made public on Christmas Eve, when most will be firmly focused on planning their summer holidays, and on preparing the Christmas celebrations. But have a watch and listen of this question that Carmel Sepuloni, Labour spokesperson on social development, put to the Associate Minister questerday:

    http://www.inthehouse.co.nz/video/39670

    So the “trials” for “Mental Health Employment Services”, and apparently even for “Sole Parent Employment Services”, appear to have been an abysmal failure. This is according to information obtained under the OIA and received on 04 September this year.

    This was already becoming somewhat evident, when an earlier OIA request was responded to by MSD earlier this year, but which few appear to have taken note of, although it was made available via a post on a blog in April 2015:
    https://nzsocialjusticeblog2013.wordpress.com/2015/04/10/mental-health-and-sole-parent-employment-services-msd-withholds-o-i-a-information-that-may-prove-their-trials-a-failure/

    Here is a downloaded PDF version, easier to read, with that same post:
    https://nzsocialjusticeblog2013.files.wordpress.com/2015/04/mhes-spes-msd-withholds-o-i-a-info-that-may-prove-trials-a-failure-post-nzsjb-final-14-04-2015.pdf

    With other more recent OIA responses that were received, and that are also now presented in a blog post, it is also becoming apparent, that there is NO real, convincing EVIDENCE that MSD could present on supposed “medical scientific research” that prove the “health benefits” of paid work in open employment, and also the supposed harm to health caused by “worklessness”. Thus we can assume that the whole, much hailed welfare reform program, started by Bennett and English, is now falling to pieces:
    https://nzsocialjusticeblog2013.wordpress.com/2015/08/09/msd-and-dr-david-bratt-present-misleading-evidence-claiming-worklessness-causes-poor-health/

    https://nzsocialjusticeblog2013.files.wordpress.com/2015/09/msd-dr-bratt-present-misleading-evidence-on-worklessness-and-health-post-09-08-15.pdf

    The MSM does not seem to take note of all these developments, that is so far. Perhaps they can bother reading some real information that deserves to be reported on, besides of the Rugby World Cup, the Red Peak and flag debate, and what else there is.

    So “wicked policy problems” remain, and remain unresolved, I fear.

    Akl • Since Oct 2012 • 437 posts Report Reply

  • Rosemary McDonald, in reply to Marc C,

    So “wicked policy problems” remain, and remain unresolved, I fear.

    ...and that would be the fear of many of us Marc.

    You know, there is an easier, and probably cheaper, method of reducing the number of beneficiaries.

    ALL those who are willing and able to do paid work should front up to WINZ and say...

    ...and they should get a job.

    A job that pays a Living Wage, with fair and equitable conditions.

    The taxes, willingly paid by these valued and respected workers, will go towards paying a respectful income to those who are not able to work.

    Those few people who are unwilling, but able to work....well, those folk will always be with us.

    And we pay ridiculous salaries to MPs and bureaucrats...so whats a few more snouts in the trough?

    Yes, I know, a simplistic little suggestion...

    Respect, Marc, for pushing this issue.

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

  • Rosemary McDonald,

    Do we need to panic?

    One of at least a dozen high level positions being advertised on the Misery Of Health webpage.

    https://careers.health.govt.nz/jobtools/jncustomsearch.viewFullSingle?in_organid=18370&in_jnCounter=222609902&in_skills=disability

    Chief People & Transformation Officer
    Posted on 11-Jan-2016Application Close Date: 22-Jan-2016

    “The Ministry is about to embark on a transformational journey that will see us step up and work more closely with the health and disability sector… To lead through the transformational change required, I need a strong, highly effective Executive team, with the right accountabilities, capabilities and mind-set, that opts into the challenge of creating sustainable change… We need to change our mindset and behaviors so we can better support the Ministry and the broader health and disability system to be successful … Being strategically focused, collaboration at the senior table and across multiple stakeholders is critical.” Chai Chuah – Director-General of Health and Chief Executive

    A particularly broad role with a substantial sector focus, which is certainly a far cry from the “run of the mill” GM HR function. You will have ownership of health and disability system-wide leadership and talent development, workforce analytics & planning and employment relations, while also ensuring that the Ministry’s human resources, leadership, culture and organisational development functions are delivered effectively.

    What does Chai Chua mean by "transformational journey"...?

    Waikato, or on the road • Since Apr 2014 • 1344 posts Report Reply

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